Autism Parents Club

Support for parents with Autistic children

Author Archives

National disability insurance scheme

By Mike Steketee | The Australian

Voters are being asked to back only parties that promise a national disability insurance scheme

IN the 1976 movie Network, Peter Finch in his role as a television broadcaster urges people to go to their windows, stick their heads out and shout: “I’m as mad as hell and I’m not gonna take this any more.” Windows are thrown open and the words echo around the country.

Australians with disability and their supporters are hoping for something similar from the campaign they are launching via their “australiansmadashell” website. As it says, “we are not going to take it any more — and there are millions of us”.

They are asking people to take a pledge to vote in state and federal elections only for parties that promise to introduce a national disability insurance scheme. The responses will be compiled and candidates, particularly in marginal seats, will be told of the number of pledges in their electorate.

An insurance scheme, rather than paying a welfare benefit or damages, as with motor vehicle or workers’ compensation schemes, would provide the essential services and facilities to the disabled and increase their prospects of a meaningful life, including a job. It would constitute a landmark economic and social reform and, while costly in the short term, would pay for itself in the long run, according to its proponents.

The insurance concept is based on the fact that all Australians are at risk in life’s lottery, whether they are among the one in 160 born with autism, one in 400 with cerebral palsy, are blind or deaf, have Down syndrome, suffer severe intellectual disability, fall from a skateboard and suffer brain damage, or dive into the surf and end up as a quadriplegic. As Sue O’Reilly, one of the campaign organisers, puts it: “This is not something that happens to Martians on another planet.”

People decide how to vote for all sorts of different reasons and there are any number of issues jostling for a place on the political agenda. But grey power helped elevate the concerns of older Australians up the scale of political priorities and the Women’s Electoral Lobby succeeded in putting issues such as child care on the agenda.

The Australian Institute of Health and Welfare estimates there are 1.5 million people with a severe disability and that will grow to 2.3 million by 2030. Including parents and other primary carers, extended family members, disability support workers, health professionals and specialist teachers, organisers say their campaign could influence more than 2 million voters, people for whom disability is not just one of many issues but central to their lives.

For years, the disabled and those supporting them mostly have accepted their lot, often consumed by the daily struggle to survive. Now, something is definitely stirring. O’Reilly says they hit on their theme because they kept hearing people saying, “I’m just so angry, just so fed up.” Under her maiden name, Corrigan, she wrote an article last year for The Weekend Australian Magazine that told of parents who, at the point of collapse, resorted to abandoning their children in emergency respite centres. She wrote of her experiences raising a son with cerebral palsy, how the lack of support drove her family to live in England, where there is a legal right to vital equipment and services, including a residential secondary school.

The death of her husband prompted her to return to Australia, to be confronted all the more starkly with the lack of services here. Her article prompted one of the biggest reader responses the magazine has received. (more…)

World Autism Awareness Day

The Autism News | English

 

By WorldAUtismAwarenessDay.org

On December 18, 2007, the United Nations General Assembly adopted resolution 62/139, tabled by the State of Qatar, which declares April 2 as World Autism Awareness Day (WAAD) in perpetuity. Her Highness Sheikha Mozah Bint Nasser Al-Missned, Consort of His Highness Sheikh Hamad Bin Khalifa Al-Thani, the Emir of the State of Qatar, supported the campaign for a World Autism Awareness Day through the current 62nd UN General Assembly Session, garnering consensus support from all United Nations Member States.

This UN resolution is one of only three official disease-specific United Nations Days and will bring the world’s attention to autism, a pervasive disorder that affects tens of millions. The World Autism Awareness Day resolution encourages all Member States to take measures to raise awareness about autism throughout society and to encourage early diagnosis and early intervention. It further expresses deep concern at the prevalence and high rate of autism in children in all regions of the world and the consequent developmental challenges.

World Autism Awareness Day shines a bright light on autism as a growing global health crisis. WAAD activities help to increase and develop world knowledge of the autism epidemic and impart information regarding the importance of early diagnosis and early intervention. Additionally, WAAD celebrates the unique talents and skills of persons with autism and is a day when individuals with autism are warmly welcomed and embraced in community events around the globe.

By bringing together autism organizations all around the world, we will give a voice to the millions of individuals worldwide who are undiagnosed, misunderstood and looking for help. Please join us in our effort to inspire compassion, inclusion and hope.

UN World Autism Awareness Day Resolution (.pdf format)


Source: http://www.worldautismawarenessday.org

Please share this news with friends, family and also with your contact list on Twitter, Facebook and MySpace.

The Autism News English April 2, april 2nd, autism, autism awareness, autistic

(more…)

The Many Faces of Autism: From Behavior to Biology

The Autism News | English

By University of California Television

Dr. Robin Hansen, Director of Clinical Program at the UC Davis MIND Institute explores the current research on the heterogeneity of autism spectrum disorders in terms of both behavior and biology, and advances in knowledge of etiology and application for treatments. Series: M.I.N.D. Institute Lecture Series on Neurodevelopmental Disorders [4/2010] [Health and Medicine] [Professional Medical Education] [Show ID: 17653]

Source: YouTube

Please share this news with friends, family and also with your contact list on Twitter, Facebook and MySpace.

The Autism News English, English autism, autistic, behavior, Biology, heterogeneity, Robin Hansen, treatment (more…)

Newer Genetic Test for Autism More Effective

The Autism News | English

Study finds chromosomal microarray analysis detects more abnormalities

By Jenifer Goodwin | HealthDay Reporter

A newer type of genetic test is better at detecting abnormalities that predispose a child to autism than standard genetic tests, new research has determined.

Researchers offered about 933 people aged 13 months to 22 years who had been diagnosed with an autism spectrum disorder three genetic tests: G-banded karyotype testing, fragile X testing or chromosomal microarray analysis (CMA), which has been available only for the past few years.

Karyotype tests identified chromosomal aberrations associated with autism in about 2 percent of patients, while the fragile X genetic mutation was found in about 0.5 percent of patients.

CMA detected chromosomal abnormalities in slightly more than 7 percent of patients, making it the best available genetic test for autism spectrum disorders, the study authors said.

“The CMA test alone has triple the detection rate of karyotyping or fragile X,” said co-senior author Bai-Lin Wu, director of the Genetics Diagnostic Laboratory at Children’s Hospital Boston. “CMA should be added to first-tier genetic testing for autism spectrum disorders.”

The study appeared online March 15 and will be published in the April print issue of Pediatrics.

“When parents have a child diagnosed with an autism spectrum disorder, one of the first questions they often ask is ‘how did this happen?’ ” said Dr. Robert Marion, a pediatric geneticist at Children’s Hospital at Montefiore Medical Center in New York City.

“In the vast majority of cases, we believe there is at least a genetic predisposition to autism, but the ability to identify a specific genetic cause has been very elusive,” Marion said. “Part of that is because of the technology that’s been available. A larger part is at this point, we just don’t fully understand what the genetic mechanism that leads to autism is.”

Standard practice is to offer children with autism two tests as a first-line genetic work-up: karyotype and fragile X testing, the researchers said.

In karyotyping, forms of which have been around since the 1960s, geneticists use a microscope to look for chromosomal abnormalities that are associated with autism, explained Dr. David Miller, a clinical geneticist and assistant director of the Genetics Diagnostic Laboratory at Children’s Hospital Boston, which conducted the new research along with Boston’s Autism Consortium.

Like karyotyping, CMA also looks for chromosomal abnormalities, but does so at 100 times the resolution of the earlier test, Miller said. CMA, a genome-wide test, can identify sub-microscopic deletions of duplications of DNA sequences, called copy-number variants, known to be associated with autism, he said. (more…)

Teacher faces sack for writing ‘loser’ on poor exam paper

The Autism News | English

By Associated Press | Fox 8

The mother of a sixth grade student in Buncombe County, North Carolina says her daughter’s teacher wrote ‘loser’ on the girl’s class assignments and she’s speaking out about the discouraging comments.

Source: http://www.fox8.com/videobeta/bb6ff0c4-bdbb-47f6-aa8f-ea9557855996/News/Teacher-writes-Loser-on-child-s-assignments

Please share this news with friends, family and also with your contact list on Twitter, Facebook and MySpace.

The Autism News English, English Buncombe County, losers, North Carolina, sixth grade student, teacher